We are committed to working closely with physicians, researchers and affected families throughout the lifecycle of our development programs in the interest of the larger patient and medical communities.

FOP Resources

The following organizations provide educational resources related to fibrodysplasia ossificans progressiva (FOP) and support research to help families living with these and other rare diseases.

MO Resources

The following organizations provide educational resources related to multiple osteochondromas (MO) and support research to help families living with these and other rare diseases.

LETTERS TO OUR PATIENT COMMUNITY

Dear Patients & Caregivers

In my last letter to you, I quoted a passage saying that the tiniest thread can be twisted into an unbreakable cord. I feel that this is what we are achieving together!

Clarissa Desjardins

CEO & Founder