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Multiple Osteochondromas (MO) Resources

The following organizations provide educational resources related to MO and support research to help families living with MO and other rare diseases.


The MHE Research Foundation
The MHE Research Foundation is a nonprofit 501 (c) (3) organization for the support of researchers, families and physicians dealing with (MHE) Multiple Hereditary Exostoses (MO) Multiple Osteochondroma a rare genetic bone disease.

Genetics Home Reference
Genetics Home Reference
Genetics Home Reference provides easy-to-understand medical information about the effects of genetic diseases.

Clinical Trials
ClinicalTrials.Gov
ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

Cord
Canadian Organization for Rare Disorders (CORD)
CORD provides a strong common voice to advocate for health policy and a healthcare system that works for people with rare disorders.

GeneticCounselors
National Society of Genetic Counselors
The National Society of Genetic Counselors consists of healthcare professionals who work with individuals and families affected by genetic diseases.

GeneticAlliance
Genetic Alliance
Genetic Alliance is a leading nonprofit health advocacy organization. They work with individuals, families, and communities to find information and interventions for disease.

Nord
National Organization for Rare Disorders (NORD)
NORD provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

GlobalGenes
Global Genes
Global Genes is a leading rare disease advocacy organization dedicated to eliminate the challenges of rare diseases by spreading awareness and providing education and resources to impact affected patients and their families.

Eurordis
EURORDIS
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 692 rare disease patient organisations in 63 countries. We are the voice of 30 million people affected by rare diseases throughout Europe.